Patient & Public Involvement
Why we want YOU to be involved?
We believe that meaningful patient and public involvement (PPI) is fundamental towards achieving outstanding clinical research. By being involved, your help will ensure we will continue to deliver exceptional research led healthcare now and in the future. You do not need to have any research experience, you are the expert. It is from your experiences as a patient or as a carer that we can learn and use this to inform our clinical research.
How can I help?
People with personal experience of healthcare, or a carer of someone else who has, are the ones who are best placed to comment on what research is needed and how that research should be done. This is called ‘Patient and Public Involvement (PPI)’. Members of the public can bring a different perspective that is not always the same as those of researchers. Your involvement helps to ensure that the entire process is focused on what is important to people who need to use our services.
Being part of our Patient Advisory Group (PAG) means you will be able to partake in numerous activities:
- Comment on our research ideas;
- Comment on how research studies should be carried out;
- Read and provide your thoughts on our research information;
- Assist us in recruiting people to our clinical trials
- Provide us with you thoughts on how we can better communicate our work.
How much time will it take?
You can be involved in as many or as few meetings as you wish depending upon your personal circumstances. Much of this work can be done via email or by post. The PAG oversees a number of ‘focus groups’, who’ll meet as often as is necessary to get the work done in the activities shown above
How will I benefit from being actively involved?
- Learn more about research
- Have a say in research;
- Share your experiences;
- Influence research priorities that are important to you;
- Meet new people
- Gain confidence and new skills; and
- Have a chance to make a contribution.
How can I join the BRC Patient Advisory Group?
You can fill out the ‘contact form’ below; alternatively, contact Andy Wragg our Patient & Public Involvement and Engagement Facilitator:
- Email: firstname.lastname@example.org
- Telephone: 0115 9249924 - Ext: 64429
PPI Patient Experiences
NIHR Nottingham Digestive Diseases BRC, the Djanogly Gallery (Nottingham Lakeside Arts, University of Nottingham) with Elpida Hadzi-Vasileva (20 August - 30 October 2016)
Click HERE to read the summary of NIHR BRCs collaboration with Elpida Hadzi-Vasileva.
How do I find out more about PPI?
Patient Advisory Group Newsletter HERE
Patient Advisory Group Brochure: Improving Patient Care through Research HERE
INVOLVE national lead organisation on PPI
Visit National Institute for Health Research - NIHR