Patient & Public Involvement

Why we want YOU to be involved?

We believe that meaningful patient and public involvement (PPI) is fundamental towards achieving outstanding clinical research. By being involved, your help will ensure we will continue to deliver exceptional research led healthcare now and in the future. You do not need to have any research experience, you are the expert. It is from your experiences as a patient or as a carer that we can learn and use this to inform our clinical research.

How can I help?

People with personal experience of healthcare, or a carer of someone else who has, are the ones who are best placed to comment on what research is needed and how that research should be done. This is called ‘Patient and Public Involvement (PPI)’. Members of the public can bring a different perspective that is not always the same as those of researchers. Your involvement helps to ensure that the entire process is focused on what is important to people who need to use our services.

Being part of our Patient Advisory Group (PAG) means you will be able to partake in numerous activities:

• Comment on our research ideas;
• Comment on how research studies should be carried out;
• Read and provide your thoughts on our research information;
• Assist us in recruiting people to our clinical trials
• Provide us with you thoughts on how we can better communicate our work.

How much time will it take?

You can be involved in as many or as few meetings as you wish depending upon your personal circumstances. Much of this work can be done via email or by post. The PAG oversees a number of ‘focus groups’, who’ll meet as often as is necessary to get the work done in the activities shown above

How will I benefit from being actively involved?

• Learn more about research
• Have a say in research;
• Share your experiences;
• Influence research priorities that are important to you;
• Meet new people
• Gain confidence and new skills; and
• Have a chance to make a contribution.

How can I join the BRC Patient Advisory Group?

You can fill out the ‘contact form’ below; alternatively, contact Andy Wragg our Patient & Public Involvement and Engagement Facilitator:

• Email: andrew.wragg@nuh.nhs.uk
• Telephone: 0115 9249924 - Ext: 64429

PPI Patient Experiences

Patient Experience - The Scarred Liver Exhibit at the Royal Society Summer Science Exhibition 2013

NIHR Nottingham BRC, the Djanogly Gallery (Nottingham Lakeside Arts, University of Nottingham) with Elpida Hadzi-Vasileva (20 August - 30 October 2016)

Click HERE to read the summary of NIHR BRCs collaboration with Elpida Hadzi-Vasileva.

How do I find out more about PPI?

Local Publications

Patient Advisory Group Newsletter HERE

Patient Advisory Group Brochure: Improving Patient Care through Research HERE

National Links

INVOLVE national lead organisation on PPI

Visit National Institute for Health Research - NIHR

PPI Registration Form

Name *

First Name

Last Name

Address *

Street Address

Address Line 2

City

State / Province / Region

Zip / Postal Code

United StatesUnited KingdomAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBosnia And HerzegowinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos (Keeling) IslandsColombiaComorosCongoCongo, The Democratic Republic Of TheCook IslandsCosta RicaCote D'IvoireCroatia (Local Name: Hrvatska)CubaCyprusCzech RepublicDenmarkDjiboutiDominicaDominican RepublicEast TimorEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland Islands (Malvinas)Faroe IslandsFijiFinlandFranceFrance, MetropolitanFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuineaGuinea-BissauGuyanaHaitiHeard And Mc Donald IslandsHoly See (Vatican City State)HondurasHong KongHungaryIcelandIndiaIndonesiaIran (Islamic Republic Of)IraqIrelandIsraelItalyJamaicaJapanJordanKazakhstanKenyaKiribatiKorea, Democratic People's Republic OfKorea, Republic OfKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyan Arab JamahiriyaLiechtensteinLithuaniaLuxembourgMacauMacedonia, Former Yugoslav Republic OfMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesia, Federated States OfMoldova, Republic OfMonacoMongoliaMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorthern Mariana IslandsNorwayOmanPakistanPalauPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarReunionRomaniaRussian FederationRwandaSaint Kitts And NevisSaint LuciaSaint Vincent And The GrenadinesSamoaSan MarinoSao Tome And PrincipeSaudi ArabiaSenegalSeychellesSierra LeoneSingaporeSlovakia (Slovak Republic)SloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia, South Sandwich IslandsSpainSri LankaSt. HelenaSt. Pierre And MiquelonSudanSurinameSvalbard And Jan Mayen IslandsSwazilandSwedenSwitzerlandSyrian Arab RepublicTaiwanTajikistanTanzania, United Republic OfThailandTogoTokelauTongaTrinidad And TobagoTunisiaTurkeyTurkmenistanTurks And Caicos IslandsTuvaluUgandaUkraineUnited Arab EmiratesUnited States Minor Outlying IslandsUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands (British)Virgin Islands (U.S.)Wallis And Futuna IslandsWestern SaharaYemenYugoslaviaZambiaZimbabweCountry

Telephone *

Area Code

Phone Number

Email Address *

What type of digestive diseases or liver condition do you have (if any)?

Any other information or interests

Are there areas of Patient and Public Involvement (PPI) work you're interested in? The Patient Advisory Group oversees a range of focus groups in following areas, please tick as appropriate. *

•   Commenting on and developing information documents, e.g. leaflets, posters and reports etc.
•   Informing people what is happening in research by developing different ways of communicating this e.g. via the BRU website, newsletter, video etc.
•   Developing ways to support participants who are thinking of taking part in clinical trails/studies (via a Study Advocacy Volunteer scheme) e.g. supporting recruitment, helping them provide their consent, providing reassurance etc.
•   Giving comments and opinions on research and related activities e.g. providing a lay review on patient information sheets, providing information that assists researchers in the design of a study, distribution of research results etc.
•   Supporting and identifying research design priorities by disease area i.e. gastro, liver related diseases

Please note that we will do our best to accommodate your preferences, but it may not always be possible.

Are you happy for your contact details and PPI interests above being kept in a database so we may contact you in the future?

Yes No

We are recruiting 'healthy' volunteers to participate in Clinical Research Studies. If you are interested, and would like to have your contact details on this database, please select 'yes' or 'no' from the drop down below

Yes No

Further information on volunteering for our Clinical Research Studies can be found on our website

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